No, I don’t have Russell Stover Syndrome.

I have Russell-Silver Syndrome, though I can be sweet – bittersweet.   Wikipedia describes Russell-Silver syndrome is a growth disorder occurring in approximately 1/50,000 to 1/100,000 births.  Some medical sites or published education papers will say it is not hereditary, some say it is, maternally; but for the sake of not making my mom already feel more guilty than she already has,  and in all in honesty we really don’t know, let just say I was one of the “lucky” 1/50,000 to 1/100,000.    It is a form of dwarfism and at 4’6″, by clinical standards I am a dwarf; I do have a proportioned body, it’s just quite diminutive.

Living with this syndrome has never been easy, being vertically challenge is a very much what it is:  A CHALLENGE.  When I was a kid, it wasn’t so much a challenge, kids are resilient and  unlike today, where kids are more concerned about their looks and style way before they should be – and hide their real selves behind the vanity;  back when I was a kid: what you see, is what you got.  There are days when the stares get to me, but for the most part am used to it, and in all honesty no one should have to get used to such humility.  Whether you’re too short, too tall, too fat, too skinny, or physically or mentally challenged; everybody deserves dignity.

I’ll delve more into my challenges in my next blog, but until then if you are interested in learning more about Russell-Silver Syndrome, here are some websites:

https://rarediseases.org/rare-diseases/russell-silver-syndrome/

https://rarediseases.info.nih.gov/diseases/4870/russell-silver-syndrome

https://www.magicfoundation.org/Growth-Disorders/Russell-Silver-Syndrome/

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